Building an Age and Dementia Friendly Community: It Takes a Village (and a Region!)

Building an Age and Dementia Friendly Community: It Takes a Village (and a Region!)

A Conversation with James Fuccione of the Massachusetts Healthy Aging Collaborative

When it comes to creating communities where older adults can thrive, James Fuccione, Executive Director of the Massachusetts Healthy Aging Collaborative, emphasizes one key ingredient: partnership. As he puts it, “It’s all about asking and listening and telling a story… getting the community to tell their story about what healthy aging means.” And a crucial part of that story is the concept of age-friendly.

This collaborative spirit lies at the heart of building age and dementia friendly communities. It’s about bringing together diverse voices – Councils on Aging (COAs), town officials, schools, businesses, healthcare providers, and older adults themselves – to create environments that support well-being and inclusivity. Because what constitutes “healthy aging” can vary significantly from one community to the next. What works in a bustling city might be very different from the needs of a rural town. That’s why understanding the specific context of each community is so vital.

A 500-Foot View of an Age-Friendly Community

An age and dementia friendly community is one that actively supports the health and well-being of its older residents. It recognizes that aging is a natural part of life and seeks to create environments where everyone can thrive, regardless of age. This often translates into improvements across several key domains that combines age friendly and dementia friendly principles so communities can be more inclusive. Based on feedback, communities may choose any combination of these focus areas and can even build or elevate other priorities. The “Salem for All Ages” initiative, for example, highlights volunteerism as a distinct priority.

  • Access, Equity, and Cultural Inclusion: Ensuring that all older adults, regardless of background, identity, or ability, have equitable access to resources, opportunities, and services. This includes addressing disparities and promoting cultural sensitivity in all aspects of community life.
  • Outdoor Spaces and Buildings: Safe, accessible, and welcoming public spaces that encourage social interaction and physical activity. Think well-maintained parks, accessible sidewalks, and community centers designed with the needs of older adults in mind.
  • Housing: Diverse and adaptable choices allow older adults to age in place safely and comfortably. This could include home modification programs, accessible housing units, and supportive living communities.
  • Social Inclusion and Participation: Encouraged and celebrated through opportunities for intergenerational connections, volunteerism, and lifelong learning. Community centers buzzing with activities, shared spaces in schools and libraries, and mentorship programs connecting older adults with younger generations are all hallmarks of age-friendly communities.
  • Transportation: Accessible and affordable options connect older adults to social activities, healthcare, and essential services. Think ride-sharing programs, volunteer driver networks, and expanded public transportation options tailored to the needs of older adults.
  • Civic Participation and Employment: Opportunities for older adults to remain active in their communities through volunteer work, civic engagement, and flexible employment options. Valuing the experience and knowledge of older adults and providing avenues for them to contribute.
  • Communication and Technology: Accessible and user-friendly information channels keep older adults informed about community resources, programs, and events. Bridging the digital divide and ensuring older adults have the skills and access to technology they need to stay connected.
  • Services (Business, Health, and Community): Access to a range of health and social services, as well as businesses catering to their needs, that are tailored to the needs of older adults, promoting both physical and mental well-being.
  • Public Safety: Creating a safe and secure environment for older adults, addressing issues such as crime prevention, fall prevention, and emergency preparedness. Promoting a sense of security and well-being in the community.

Map of AF/DF current Communities

The Power of Regional Approaches

Fuccione highlights the importance of regional collaboration, particularly for smaller communities with limited resources. Often in Massachusetts, individual communities are left to pursue grants or address needs, but these regional efforts have proven that cities and small towns can support each other. By working together, neighboring communities can pool resources, share best practices, and create a broader impact. This could involve joint transportation initiatives, regional volunteer programs, or shared community spaces. This regional approach is especially valuable for creating age-friendly communities because it allows smaller towns to leverage the resources and expertise of larger partners.

Resources for Building Age-Friendly Communities:

By embracing a collaborative, community-driven approach, and by understanding the unique needs of each locality, we can create truly age-friendly environments where older adults are valued, supported, and empowered to live their best lives. As Fuccione reminds us, “It’s an investment in all of our futures.”

Living Well After the Diagnosis

Living Well After the Diagnosis

  • Friday, January 31, 2025
  • 9:30 am – 12:00 pm ET
  • Live Virtual Program

Designed for individuals living with early stage dementia & their care partners

All are welcome to attend

The Alzheimer’s Association, New England Chapters, will offer a special half-day program, Living Well After the Diagnosis, for individuals living with early-stage dementia and their care partners. The program will feature a panel discussion of individuals living with memory loss.  Panelists will discuss coping with a diagnosis and combating the stigma associated with the disease. They will also talk about the importance of disease education, social engagement, and having a voice in your own care. In addition, Dr. Julie Brody Magid will present Living Well with Cognitive Challenges: Tips and Strategies, featuring cognitive strategies to help manage common difficulties encountered in daily life to improve feelings of well-being and self-reliance.

This program is sponsored by Lorenzo’s House and Jewish Family & Children Services.

Learn more and REGISTER HERE

Alzheimer’s Association’s Free, CEU-Earning Program

Person-Centered Dementia Care: Understanding Behaviors and Effective Communication

Thursday, December 12, 2024
12:00-1:30 PM
Zoom
As people living with dementia progress in their journey, their ability to communicate also changes. Professionals must discover new ways to communicate effectively for all stages of the disease. Behavior is a powerful form of communication and is one of the primary ways for people with dementia to communicate their needs and feelings as the ability to use verbal communication diminishes. Join us to learn how dementia affects communication, how person-centered approaches can improve communication, how to decode behavioral messages, identify common behavior triggers, and learn strategies to help intervene with some of the most common behavioral challenges of Alzheimer’s disease.
Free CEUs for social workers and nurses

Registration link

Grants for Dementia Friendly Work

The 2024 Dementia Friendly Massachusetts (DFM) survey results indicated a strong interest in learning about grant funding opportunities. Several responses also pointed to a lack of financial support being a barrier to growing DFM initiatives. Here are some grant programs and funders that might be a fit for your ideas (each title is a link):

Service Incentive Grants (SIG), EOEA grant funds administered by MCOA

Categories of SIG grants are subject to change, but the FY25 categories most relevant to DFM work were for Memory Cafés, Age-and Dementia-Friendly initiatives, and Caregiver Respite. The link takes you to an overview of the FY25 grant timeline (starting in spring 2024), which will be similar for FY26.

Point32 Health Foundation

Point32Health Foundation has an equity in aging focus. It supports programs that acknowledge and seek to remedy systemic barriers to better health. If your program idea would help meet needs of high-risk people within your community of older adults, it might be eligible for support. Inquiry forms are accepted at any time.

Massachusetts Community Foundations

Community Foundations in Massachusetts are regional nonprofits that span the state and have various means of doing philanthropic work in their communities, either by giving grants directly or directing donors to organizations and programs that they endorse. Find out about the one close to you: if they give grants, and if your program ideas might be eligible.

Berkshire Taconic Community Foundation
The Boston Foundation
Brookline Community Foundation
Cambridge Community Foundation
Cape Cod Foundation
Community Foundation of Nantucket
Community Foundation of North Central MA
Community Foundation of Western MA
Essex County Community Foundation
Foundation for MetroWest
Greater Lowell Community Foundation
Greater Worcester Community Foundation
Martha’s Vineyard Community Foundation
South Coast Community Foundation
Watertown Community Foundation

Local Cultural Councils

LCC funds could support musicians and artists featured at Memory Cafés! Every municipality has an LCC that distributes MA Cultural Council money. Usually COAs partner with an artist who will write the grant and be the direct recipient of funds.

Max and Victoria Dreyfus Foundation

Providing small grants ($1,000-$20,000) to nonprofits and government entities for a broad array of programs or operating support. November 12 is the next deadline. Learn more on their FAQ page; they have not defined specific funding priorities.

We are keeping a growing list of these on the DFM website’s Resources page.

Unique Dementia Care Models to Expand Our Sense of Possibilities

We all know what it’s like to be mired in the day-to-day demands that make it increasingly hard to see the forest for the trees and to maintain the vitality of our connection to the meaning of our work.

But there are unique ideas and programs aiming to improve how we build a society that is livable for older adults that are brilliantly worthy of our attention. They encourage us to slow down and take the time to grow our compassion through the extraordinary experiences of others.

A couple programs of this nature came to my attention in the past week: Gold Coats and the living experiment that inspired the Human Forever documentary film (2024).

Gold Coats

The Gold Coat program, based at the California Men’s Colony State Prison in San Luis Obispo, trains inmates to provide a high standard of care for their fellow inmates who are living with dementia and other cognitive disorders. Testimony from the Gold Coats provides extremely moving insight about the power of caring for others in the most trying circumstances.

Human Forever

Teun Toebes, a 25-year-old Dutch nursing student and now an international spokesperson on dementia and healthcare innovation, lived in a closed ward memory care unit in a Dutch nursing home for three years. He wrote a book about that experience and then toured the world with independent filmmaker Jonathan de Jong to learn about international models of care and to create the film Human Forever (2024).

Teun Toebes’ book about his experiences: The Housemates: Everything One Young Student Learnt about Love, Care and Dementia from Living in a Nursing Home

Go ahead—give yourself permission to learn a little bit about creative and innovative ways to provide care and special experiences for people living with dementia.

The Home Modification Loan Program in MA

The mic-drop moment at the July 11 Outreach meeting was when the presenter, Tim O’Reilly, who manages building projects for Backyard ADUs, shared that Massachusetts’ Home Modification Loan Program (HMLP) will provide 0% interest loans of up to $50K to eligible households for the building of accessory dwelling units.

Older or disabled adults who are interested in making changes to their homes to increase their long-term, at-home independence, may apply to the program.

Additionally, household members who are not disabled or over 60 can submit applications for home modifications or the creation of accessory dwelling units (free-standing or in the existing home) that will aid older adults or people with disabilities in their households.

Distinct from a home repair program, HMLP provides loans that support projects that may include: ramp and lifts, bathroom and kitchen adaptations, sensory integration spaces, fencing, and, as noted, accessory dwelling units. It’s all about increasing accessibility.

The HMLP is administered for the state by the Community Economic Development Assistance Corporation (CEDAC), which in turn has delegated the processing of applications to regional agencies. For a list of regional provider agencies and eligibility and application information, see the program brochure.

More general information on the program can be found on CEDAC’s HMLP webpage.

2023 Income Limits

Household size Maximum Annual Income
1 $207,800
2 $237,600
3 $267,200
4 $296,800
5 $320,600
6 $344,400
7 $368,200
8 $391,800

Mark Your Calendars! New Resources for AF/DF Communities and All that are Interested in Dementia – DFM Monthly Meeting: Norwell and Swampscott

The next meeting will be held on Wednesday, May 8th.  The session will be held at 1:00 pm. The meeting will feature Norwell COA Director Susan Curtin who will discuss the new Norwell Memory Café and the SE Regional DF Facebook page. https://www.facebook.com/groups/southshoredementiaresources.

In addition, Swampscott COA Director Heidi Whear will talk about the newly launched “Swampscott for All Ages Forget Me Not Initiative.” The “Forget Me Not Initiative” was officially kicked off at Café Avellino where staff have been trained to support people living with dementia. https://itemlive.com/2024/04/23/an-event-not-to-be-forgotten-in-swampscott/

You can register here.